FUTUREPROOFING PART 2 –LEANING INTO PHYSICAL DECLINE

  “Be confident with the the guardianship you have over your own life” A few nights ago, when I got out of bed to go to the bathroom, my right leg wouldn’t take my weight. It kept collapsing underneath me. For some reason the quad had suddenly, very suddenly, no warning, gone on vacation. This … More FUTUREPROOFING PART 2 –LEANING INTO PHYSICAL DECLINE

Future Proofing

Futureproofing – Part 1 I began writing these posts for my children. I wanted to share with them the things that we weren’t likely to talk about over dinner, or at family gatherings or just hanging out. I wanted to tell them how special they are to me, how essential to who I am, how … More Future Proofing

Travelling in Italy – Access for People with Disabilities

I am an incomplete paraplaegic, injured at T7/T8. I walk short distance with crutches, can climb steps (but i need assistance if they are high), and my wheelchair has hooks to carry my crutches when I am not using them. I am a 57year old woman living in New Zealand. I am very fit and … More Travelling in Italy – Access for People with Disabilities

Never Never Never Give Up

After writing the post about the link between managing spasm and improving walking, I continued thinking about how important it is to never, never give up. No matter the obstacles, challenges, frustrations, fears never give up. I had this image in my head of enormous blocks that are seemingly unsurmountable …

Stretching and Spasm – A Revelation

OR: FINALLY, A MEDICAL EXPLANATION HOW THIS INCOMPLETE PARAPLAEGIC’S WALKING CONTINUES TO IMPROVE I came across an article from the University of Washington that blew my mind. I am excited, delighted and vindicated. Some highlights: Spasm caused by spinal cord injury can prevent voluntary movement of weak muscles. Sounds pretty simple. Except it’s not. Spasm … More Stretching and Spasm – A Revelation

The Dictator Within

My mantra “determination, persistence and commitment” would be just words if it weren’t for The Dictator. The Dictator shouts and yells, he snarls and barks, he pushes and shoves, he cracks the whip. The Dictator gets me to the gym every day, he makes me go where I’m scared to go, he makes me stretch … More The Dictator Within

Wired To Walk

Since I first tried walking by electronically stimulating dorsi-flexion and a little knee and hip flexion (see Bionic Woman)in my mostly paralysed left leg, I’ve made amazing progress. Particularly given that I have a spinal cord injury at T7/T8 and I was told I’d never walk … I had been using a dictus to lift … More Wired To Walk